Wednesday 5 March 2008

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Everything you need to know about Muscular Dystrophy


Reflections of a Peacemaker: A Portrait Through Heartsongs
Reflections of a Peacemaker: A Portrait Through Heartsongs

List Price: $16.95
Amazon Price: $3.68

Average Customer Rating: (19 reviews)
Editorial Review:

Mattie J. T. Stepanek lived and died a child, but he had the spirit of a giant. Affected by a rare and fatal neuromuscular disease, Mattie lived almost fourteen years but in that time became a poet, best-selling author, peace activist, and a prominent voice for the Muscular Dystrophy Association. Before his death in June 2004, his five volumes of Heartsongs poetry sold more than a million copies.

Reflections of a Peacemaker: A Portrait Through Heartsongs is the final collection of Heartsongs that Mattie was working on when he died. It includes the last poem Mattie penned along with a special collection of unpublished poetry, photographs, and artwork spanning the decade from when he began writing Heartsongs at age three. Culled from the thousands of poems, essays, and journal entries Mattie left behind, the entries in Reflections of a Peacemaker create a portrait of Mattie in his own words. In these poems he explores disability, despair, and death but also the gifts he fin...


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Customer Reviews:
Summary: The Genius of Mattie Stepanek
Content: I own this book, and even purchased a copy for the use by my Alma mater University for their children's collection of books.

This book is the FINAL published book of poems by 13 year old Mattie Stepanek, who died on 22 June 2004 from a rare form of muscular dystrophy: Dysautonomic Mitochondrial Myopathy. He was a genius by intellect, but as sweet as a boy could have been. I recommend this book because of Mattie's keen insight into major human issues such as LOVE, PAIN, SUFFERING, FRIENDSHIP, SICKNESS, LONLINESS, FULFILMENT, DEPRESSION, AND IMPENDING DEATH. By late Autumn of 2003, I believe Mattie surmised that not only was death possible but was probably imminent.



By Dec 2001, Mattie and former US President Jimmy Carter became close friends, and this undoubtedly had an impact on Mattie's later poems. You actually SENSE Mattie becoming a Peacemaker like his childhood idol, Jimmy Carter. This book is more than simply GOOD poetry, but the plethora of photos from his mother's collections give the reader a visual biography of a boy who ROSE ABOVE his fatal sickness and who proved to be an angel in disguise for millions upon millions of people, when the day was Done! A MUST BUY Book.















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Easy to understand information about Muscular Dystrophy; Duchenne muscular dystrophy and other types of MD, symptoms of muscular dystrophy and how muscular dystrophy is diagnosed, how muscular dystrophy is treated and the prognosis for someone suffering from muscular dystrophy.

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